Today we’re talking about the people and places where we can keep our shoulders down and know that our children with Down syndrome will be accepted no matter what. Join us as we chat about our stories of how we first connected with the DS community, plus online connections vs in-person connections. Then check out the DSDN app, your go-to spot for connections with other lucky mamas!
Read MoreHaving a child with Down syndrome means you’re always learning about something new! And today’s topic is: oral facial myofunctional therapy.. a technique used to improve the way our mouth and face muscles work! We have Irene Iskander (dental hygienist + lucky mama) on the show today to answer all of our questions.
Read MoreFriends! Have you listened to The Telepathy Tapes Podcast? In this show, creator and host Ky Dickens explores the “profound abilities of non-speakers with autism - individuals who have long been misunderstood and underestimated.” Let’s talk about it! Have we experienced a shared consciousness with our own children? Is telepathy possible? What have critics said about this phenomenon? All this and more today!
Read MoreSid Ghosh is 18 (going on 81) years old and he just published his first full length book of poems with a major poetry company. He’s been given extraordinary praise from renown authors, and us too of course! We’re chatting about his experience of the world, the publishing process, challenging our comfort zones, and so much. There’s a lot of talk about energies, frequencies, and connectivity in this one too. We hope you join us for this incredible interview with Sid Ghosh, and his mother, Dr. Vaish Sarathy!
Read MoreOxford Dictionary defines ableism as: “discrimination in favor of able-bodied people.” And on today’s episode, we’re defining ableism with our own examples. Because a lot of ableism is just actions and systems that we may have never questioned.. until being affected by disability. So what do we do when we experience ableism in our communities? Lets unpack it in this week’s episode.
Read MoreAfter so many years in the Down syndrome community, we’ve had our fair share of surprising and even disappointing experiences with other advocates. The more we put ourselves out there, the more opportunity there is for disagreement. Ironically, the DS community doesn’t always feel inclusive. So what can we do to support the bigger picture even if we disagree on smaller things? Lets start by assuming the BEST in each other.
Read MoreWith our kiddos growing up, we’ve noticed huge changes in the social dynamics that have left our kids with disabilities feeling lonely over summer break, especially when compared to their neurotypical siblings. If you’re a parent to a child with a disability, you may have noticed this as well. We might not have all the answers but we want you to know: we see you and we are cheering you on in this!
Read MoreIn this current political climate, one of our goals is to keep you all up to date on legislature that impacts our community. So friends, its time to talk about the “Big, Beautiful Bill” and how it will affect individuals with Down syndrome. We are SO grateful for an incredible guest to help us out. Sean Feely is the new Director of Advocacy and Policy at the National Down Syndrome Society and he’s here today to answer all of our questions.
Read MoreWe’re talking about a not-so-fun part of summer today.. summer school! Specifically, extended school year (ESY) for our children with Down syndrome. What is extended school year? Is it necessary? Are our kids in ESY this summer? Will our kids regress if they don’t go to summer school? Or is traveling/playing throughout the summer also a beneficial learning opportunity?
Read MoreWelcome to a new season of The Lucky Few Podcast! We’re starting off strong with an episode all about… diversity, equity, and inclusion. Because these are more than just buzz words, friends. Let’s talk about it! We’re also introducing our guest host for the season.. Brandy Coleman! She’s an advocate, educator, wife, and mother of seven - including her daughter with Down syndrome! Brandy works with the Down Syndrome Diagnosis Network to make sure all families feel seen, heard, and supported. She’s a fierce advocate for BIPOC families and we’re SO grateful for her perspective this season.
Read MoreIt’s 2025 and there are only a few things we know can be true… The world is chaotic. And we need more compliments. That’s why our very own Heather Avis wrote her new children’s book, “I Like You So Much: Celebrating What Makes You, You!” We’re chatting all about the inspiration for this book and more today! The reviews are in (literally!) and this book is a MUST-read. We hope you’ll share it with a kiddo in your life who needs to hear just how very likeable they are.
Read MoreWell friends, we’re 300 episodes into the podcast and we finally figured out a way to keep track of just how long we’ve been doing this.. and no its not our neck wrinkles! Lets go behind the scenes today as we reflect on the last 7 years. Whether you’ve been here since the beginning, or you’re just joining us now, we are SO grateful for you. We hope our vulnerability has encouraged you and reminded you that you are not alone on this journey.
Read MoreIf you’re a parent, you’ve likely wondered.. Should I let my child use this public restroom on their own? Is my child able to handle these kitchen tools? Can I let my child attend this sleepover? And if you’re a parent to a child with a disability, you might have even more fears around these risky activities. It’s time for a conversation about reasonable risks for our kids with Down syndrome.
Read MoreOverwhelmed by all the news lately? Us too. That’s why Ashley Barlow (@thecollaborativeiep) is back on the show today to breakdown all of the changes to the Department of Education and the impact on students with disabilities. We know that many of these changes have not happened yet, but the current political attitude towards disability has us a little worried. If you’re feeling the same way, stay informed and know that we’re all in this together.
Read MorePicture this: your child with Down syndrome tells you they want to play a sport. You sign them up for the local team, drop them off at practice, and pick them up without any difficulties. Everything goes smoothly… But that’s not always reality is it? Lets break down the complexities of extracurricular activities in this episode.
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